Established in 1985, The ALS Association is the only national non-profit organization fighting ALS on every front. By leading the way in global research, providing assistance for people with ALS through a nationwide network, coordinating multidisciplinary care through certified clinical care centers, and fostering government partnerships, The Association builds hope and enhances quality of life while aggressively searching for new treatments and a cure. Join us at ALS Nexus: als.org/als-nexus
External link for The ALS Association
1300 Wilson Blvd
Suite 600
Arlington, Virginia 22209, US
Are you looking for an opportunity to engage in thought provoking discussions that will shape the future of ALS advocacy, research, and care? No matter how you are connected to #ALS, we encourage you to join us at ALS Nexus this July. Register today: als.org/als-nexus
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A big THANK YOU to our friends at Spekit 🐙 for taking part in the 10th anniversary of the Ice Bucket Challenge and their support helping make ALS livable until we can cure it. We look forward to seeing them at the CEO Soak in the DC area this August!
Rounding out the week with our executive 💦 soakees 💦 of the 2024 ALS Soak! We're honored to support our customer, The ALS Association, in their CEO Soak event. The ALS Association is dedicated to discovering treatments and a cure for ALS, and to serving, advocating for, and empowering those affected by ALS to live their lives to the fullest. Our leadership team got soaked to raise awareness and funds, as a result of quickly smashing our goal! Huge thanks to everyone who donated. But the biggest splash is yet to come—our CEO, Melanie Fellay, will be taking the plunge in Washington D.C. on August 8th. Stay tuned! 🤫 #CEOSoak #ALSAssociation
Did you know figure skating was first contested as an Olympic sport in 1908, during the Summer Olympics? As the Paris Olympics begin, we wanted to shine a spotlight on former Olympian, Ron Joseph. Ron and his sister were bronze medalists in pairs figure skating at the 1964 Winter Olympics. They were recently inducted into the U.S. Figure Skating Hall of Fame, but he was unable to attend the ceremony in-person after being diagnosed with #ALS. Learn more about how he’s using his platform to help raise awareness of the disease for the ALS community. https://bit.ly/Olympic-ALS #Paris2024
We are kicking off Advocacy Action Month next Thursday, Aug. 1! Get ready to send emails, make phone calls, drop-by your lawmaker's office to urge them to take the Ice Bucket Challenge and join the fight to end #ALS. Join our email list to learn more: als.org/advocate
Medicare benefits are confusing to many of us. Join us for our upcoming webinar as we clarify the types of Medicare options that are available, what they cover, and how the National Patient Advocate Foundation is here to support you if further questions arise. Register today! https://lnkd.in/eaiyE6wS
The 2024 hurricane season is underway, but even if you don’t live in part of the country where having a hurricane plan is encouraged, the reality is weather and other natural emergencies can, and do, occur everywhere, at any time of year. For people living with ALS, their families and caregivers, having a plan for how to deal with emergency situations is vital. Learn more about how you can be prepared: https://lnkd.in/ebeQ3FgV
The ALS Association applauds FDA for its announcement of a plan to establish a Rare Disease Innovation Hub (the Hub) to work across rare diseases and enhance and streamline existing processes. We are on a mission to make ALS livable until we find a cure. Behind every disease, no matter how common or how rare, there are loved ones, families ravaged by emotional, physical and financial toll of the disease. We must act with urgency to bring about change and hope. We continue to support the FDA and their work on the Action Plan for Rare Neurodegenerative Diseases, including ALS, as part of the implementation of the ACT for ALS Act, the Rare Neurodegenerative Disease Grant Program, and our commitment to developing safe and effective therapies that target all forms of ALS. Read more about Rare Disease Innovation Hub: https://lnkd.in/dn9TPtwX
Funds raised through the Walk to Defeat ALS help make local care programs possible. Get involved: walktodefeatals.org. #WalkToDefeatALS
The ALS Nexus conference brought the entire ALS community together in a way never seen before! ❤️ We gathered with over 500 people in-person just outside of Dallas for the conference and more than 1,000 attendees virtually from around the globe! 💙 We took the Ice Bucket Challenge in recognition of the challenges 10th anniversary. 💛 We heard from so many inspiring speakers and panelists who shared their expertise. Thank you to everyone who participated and helped make #ALSNexus a success this year! Learn more about this year's conference: https://lnkd.in/e7pE3iGV We are excited to announce plans for ALS Nexus 2025 are already underway so mark those calendars for August 11-14!
Jared Salomon lost his father to ALS while he was planning his engagement. While his father was not around to physically attend the wedding, he was there in spirit and left an amazing gift for his family and friends: a father-of-the groom speech. Read the full story and listen to his touching message: https://lnkd.in/efDt-VjT